Showing posts with label Autism Service dog. Show all posts
Showing posts with label Autism Service dog. Show all posts

Tuesday, November 1, 2016

Autistic Speaking Day I'm just going to be me

growing up I spent years learning very hard how to blend in, and yeah I largely failed at it, it seems  but still there are parts of me I blocked up and away  to try to blend, like shimming, I stim, a fair bit less than I did when I was little (though I am told I still stim a lot) adapting my communication and other things,

But 

Blending in is not my goal 

I just want to be me 

I'm tired of trying to fit into everyone's boxes of how they think I /should be,  

Everyone has these expectation 

Either I must be or try to seem non disabled and I must be this (fill in chain of behaviors social skills, likes and dislikes, ways of communicating subjects of interest leaguer activities and interacting here) way to fit in to blend (said way burns out all spoons and is not achievable at all even with my best effort put forward )

Or

I need to be autistic and disabled in exactly /this/ way (fill in arbitrary random expectation of what people expect me to be like and my life line to have looked like as a white autistic CIs disabled female) to have my current needs communication needs/style validated 

If your a certain age you can't like xyz 

If your disabled you can't like (fill in arbitrary things here)

I'm tired of having things that I have learned, skills I have gained relationships in my life and other things used as ways to invalidate my disabilities,

Growing up I went through a phase where I worked hard to blend because I was told and I believed it was the right thing to do, that how I would be successful, happy so I gave it my alll and when this stage hit I sort of failed in horrid ways  it was a mess,  i also wasn't able to properly figure out where and how and that's way to much to write about the day after Samhain, I mostly just stood out a lot more and looked a lot weirder,.....and then I started a weird mix of trying to pass harder while not caring and embracing being the weird one,

I'm still the weird one, the strange one and I embrace that  but I no longer want to burn my spoons to try and pass, I just want to be me,  I'm now learning to accept myself, and my limitations,  and that it's ok to use support  and do things in ways that I prefer and that work better for me.

That doesn't mean I'm backsliding 

That doesn't mean I'm faking 

That doesn't mean I'm trying to be deceptive 

That doesn't mean I'm lazy 

It just means I want to find and do what's right for me 

I just want to be me 

I am going to do what works for me, when anyone else does that it's considered a life skill, many times people find tricks and short cuts that work for them and help them and they are seen as adaptive and unique and resourceful, and everyone is encouraged to embrace themselves and be who they are unless who you are is autistic, then you are encouraged to blend and those things that might help you or things that are useful to you that might be seen as creative in a non autistic and be famous on Pinterest, is now a seen as a nusaaunce accomidation and something you should adapt passed needing, and if you do  for a little while then  your expected to be able to all the time.But here is the thing that's not how our brains work, if we can sometimes manage with out a support that doesn't mean we no longer need or will benefit from it.

And I'm tired of it all

Everyone else is allowed to be themselves, and I just want to be me, and that's what I'm going to do, because I can't afford to burn spoons on pretending to not be me, 

So I'm going to stim 

I'm going to communicate in the way that works best for me (AAC)

I'm going to use visual supports

I'm going to rely on the services I need

I'm going to enjoy my souixie and the banshees, London after midnight, the cure, mission U.K., switch blade symphony,as well as non post punk bands and some metal 

I'm going to switch between black clothes with reds greens and purples and earphones 

I'm still going to carry my pikachu in my backpack 

I'm going to swim and hike and go play at the park and do things I like 

I'm going to study geailge (Irish) and build an Irish vocabulary in my AAC app 

I'm going to hopelfully onday again partner with and use a service dog 

I am Autistic 

I am neurodivergent 

I'm just going to be me and these things are parts of me.

I've never fit into anyone's boxes perfectly ever and I'm not going to 

I'm just going to be me

Tuesday, March 31, 2015

very late and Devistationg upate : We had said good byr to Nim



Hi Everyone,
I have a devastating Announcement, I have been holding off on making it here because I had already made it a few times in other places to friends and family and it has just been to hard to post about again and I honestly did not remember and when I did remember I did not have the strength  to repeat this announcement until now,  Nim , my beloved retired service dog, has passed away, she died feb 20th around 6 o'clock. on Saturday feb 14th nim had 2 grandma seizures in her sleep. but was mostly back to normal the next day,  Until tuesday night when suddenly nim started getting sick.  a trip to the ER vet and we tried using pepcid to deal with what seemed to be nausea, but as the night went on nim became confused and wandering aimlessly alert but confused.  Thursday Nim seemed better though she was getting stuck in corners (a lot) and walking dazed often in circles She also would fall every once and a while. we had family come visit her on Thursday night and she didn't seem to recognize them and responded to them by barking but eventually realized who they were.  Friday she lost all ability to stand, she didn't seem to be able to respond when her loved ones entered the room. We were very blessed to have close friends and family who could make it come with us, and a few who got there shortly after, Nim did not die alone she was in the arms of my friend Ca , my fiancĂ© and in my arms as she passed, she was surrounded by love and he last memory was being surrounded by people who loved her.  I can't begin to express how much i miss her or how much i am hurting. Nothing is the same anymore, everything feels off and wrong and I just cant even really express it right now.  i don't even know how to end this post but to say Nim was my first dog and my first service dog, she meant everything to me ans still does she will always be missed greatly and she will always be my baby girl/


Saturday, May 24, 2014

What is an Autism Service Dog

What is an autism service dog?

The Ada refers to a service animal as "Service animals are defined as dogs that are individually trained to do work or perform tasks for people with disabilities. Examples of such work or tasks include guiding people who are blind, alerting people who are deaf, pulling a wheelchair, alerting and protecting a person who is having a seizure, reminding a person with mental illness to take prescribed medications, calming a person with Post Traumatic Stress Disorder (PTSD) during an anxiety attack, or performing other duties. Service animals are working animals, not pets. The work or task a dog has been trained to provide must be directly related to the person’s disability. Dogs whose sole function is to provide comfort or emotional support do not qualify as service animals under the ADA."

  Link : http://www.ada.gov/service_animals_2010.htm

  "Under the ADA, service animals must be harnessed, leashed, or tethered, unless these devices interfere with the service animal’s work or the individual’s disability prevents using these devices. In that case, the individual must maintain control of the animal through voice, signal, or other effective controls."

  Link : http://www.ada.gov/service_animals_2010.htm

    What Is An Autism Service Dog?

 Odds are if you are reading this you are already familiar with autism but for those who may not know, Autism is a complex neurodevelopment disorder that affect both verbal and non verbal communication, social skills and sensory processing.

  Autism service dogs (also call SSIG or sensory signal alert dogs) are dogs trained -Tasks- to help an Autistic individuals, these are general tasks that help with the sensory processing issues many of us
on the autism spectrum experience. Things such as hearing and guide work may be taught for individuals who have trouble processing or who are either over or under responsive in the ares of visual and auditory processing. Autism service dogs may also be trained to retrieve objects and such during overload that help the individual communicate or get through the overload. During overload autism service dogs may also help guide handler out of a building or to a quiet place where they can safely recover. Each autism service dog is going to be trained different tasks based on the needs of the handler.

Unfortunately many organizations don't train proper autism service dogs and out right refuse to train them for adults, there are a few that do though. Autism service dogs can help give an adult with autism independence and drastically improve the quality of life of autistic individuals.

Things that are not tasks/ do not qualify a dog as a service dog

  • Any natural -untrained- behavior
  • Guarding handler
  • crime deterrent
  • Increasing socialization,
  • Comforting
  • Natural calming presence
  • Tethering
  • Search and rescue (though a handy side think not really a legal task such as it is define)
  • Basic obedience such as sit stay come ect
  • Laying under a table
  • Emotional support
  • Increasing confidence.
  •  Watching the child or adult
  • Helping individual make friends
  • Natural untrained alerts

While there is no doubt some of these things listed above such as natural ale retrying and offering emotional support are helpful and can have a massive positive impact they are not legally considered work or tasks. There are others on this list like babysitting a child or tethering that are not work or tasks and should never be promoted as such.

Service dogs for children

This is an extremely complicated and emotionally charged area to talk about, the truth is this is a really grey area.a lot of parents first look into autism service dogs as a I way to get help with things they find challenging with thier children, bolting and wandering be the primary and some want them to help this kids make friends. As stated above this is not actually a task or work. Service dogs are not babysitters and shouldn't be trusted to watch over your child anymore then you trust a toddler or a wheelchair to babysit your child.  A service dog need to have tasks that help the child. Another issue is that of stewardship most autistic children simply are not able to steward a dog.   while it is clear and should be common sense a 2-4 year old can't steward thier own dogs it is also important to remember many older children still aren't able to do this, Most children with autism can't care for themselves much less steward thier own dogs.  something that is required by the Ada of any service dog handler, however there we some who will be great candidates for a service dog and will be able to steward their own dog and may really benefit from one. so an inability to steward ones own dog can't be blanketed to all children. So really this needs to be decided on a case to case basis,


if you are considering a Service dog for yourself or your child  here are some things you need to do and consider

you need to first you need to do is consider Why do you want a service dog? If you want it for emotional support then you might want to look instead into an emotional support animal see below. If you want it to make your job as a parent easier or to serve as a physical anchor to prevent your child from wandering or bolting off in public then a service dog really isn't right for you. Please reconsider and or think of other ways the dog might be trained to help your child!

next you need to determine if your child can steward their own dog, if not will you or a staff member be able to be with them at /all/ times that they are with the dog and the dog is working? when looking for yourself you must be able to steward your own dog or have reliable assistance in the stewardship oof the dog,

What sorts of things does your child need help with? What can the dog do to help your child?  *remember the dog has to help the child not you as the parent*  it is also important to remember  what things do not count as tasks as many organizations will try to sell you a 5-30,000 dollar SD based on these non tasks!

Service dogs are expensive and a /lot/ of work, do you have both the time and money for one of these dogs? While the benefit from a service dog can be amazing it is important to remember the cost isn't just what you have to pay or raise to get the dog it is also the dogs care over a life time, you will need to pay for vet bills both annual and for any emergencies,  food, toys ect. You will also need to maintain the training which will require regular daily training session and then find time for exercise and play for the service dog.  Are you able to provide all of this? Do you have the resources you need to provide this? Are you ready willing and able to make and to take on such a serous commitment?

Taking on a service animal is to take full responsibility for the health and care of this animal over a life time! Eventually the dog will get hurt or sick and eventually the dog will get old and will need to retire and sadly will eventually die! What do you plan to do if the dog gets sick, injured and can't work anymore? What about when it gets old and needs to be retired?  If your answer is to just drop the dog off at some shelter once it is old and used up a service dog is not right for you! These dogs need care well into their old age when you takes on a service dog you are promising to be there until that dogs last days as painful as they will be.

Getting a service dog isn't like getting a full time babysitter it's like getting a second child!

These are only a few things to consider before getting an autism service dog for your child,



Tethering!


I made this it's own category on purpose

Tethering is a dangerous practice used  by most "autism service dog organizations"  as a method of preventing wandering. While wandering is an issue I take very serously and something I struggle with as an adult with autism I can tell you right now this is a very dangerous and borderline unethical and borderline abusive  practice  there are risks to both dog and child!

Note the ADA requires the handler be in control of their service animal,however tethering puts the animal in control of the child, which is technically a violation of that ADA requirement

The Risks


To dog

Injure and strain on the jigs joints When a child suddenly decides to bolt

If the child is strong enough the dog could end up getting dragged by the child. Additionally a child who is strong enough could  knock the dog off balance or cause it to stumble should they bolt suddenly . while this is not a  likely occurrence with smaller children kids grow and become both bigger and stronger.

The dog that is tethered to a child can't escape and may be injured by a child who is melting down especially if they are prone to violent outbursts as they are a close target

 To the child

  • A fall or physical injury caused when the child tried to bolt and the dog does as it is train and stop and sits or lays down. The child who is bolting will rather suddenly be stopped and could become injured
  • Service dogs are still dogs, sometimes they make mistakes, should this happen while a child is tethered to the dog especially if the isn't a parent holding the dogs leash, known as tripod ding, the child can be knocked down and possibly dragged by the dog should they try to chase a squealer.
  • Last but not least and the most frightening the child could be attacked or get caught in the middle of a dog fight! Unfortunately service dogs have on many occasions been attacked by other dogs while working, usually by a dog who is off leash or if someone brings their dog up to try and greet your working dog! A child who is tethered to the dog when such a thing happens runs the risk of severe physical and psychological damage!! Are you will to risk having your child tied to a dog that is being attacked by another dog or animal?

Some organizations also promote tethering more then one child to a dog, this is out right abuse plain and simple and will increase risks to both kids and dogs


More info on tethering please read

http://www.servicedogcentral.org/content/node/80

http://animalbehavior.wordpress.com/2008/01/31/kids-with-autism-and-assistance-dogs/

Finding a proper program is very challenging as many organizations that claim to train autism service dogs are often placing tether or search and rescue dogs,  often these are what people call cookie cutter dogs and are sold often on the emotional benefits and don't tend to train tasks that help the child.

If your an adult looking into getting an autism service dog it is going to be even harder most  organizations refuse to train service dogs for autistic adults period!  There are a few good ones that do by they are very hard to find!

Alternatives to tethering
  As I have stated wandering is an issue that I take /very/ seriously! As an Autistic adult wandering is something I still struggle with regularly and I know several wonderful Autism parents who have lost amazing children to wandering. tragic deaths that should never have happened!  however tying a child to a dog is not a safe or good solution! here are some alternatives ( I will update this  as i find new ones)

  • have a soft handle attached to the dogs vest for the child to hold on to.
  • Have mason alert flyers ready for an emergency with current photo,  child or adults name, age, if they are verbal, nonverbal, semi verbal or may become non verbal, what they and the best way to approach and communicate with them, sensory aversions, what not to do and a list of local hazards and things the child is drawn to like water, Also make sure to have contacts list a written description and any identifying features.
  • ID on the child such as a medical alert bracelet
  • tracking device 
  • use a stroller if you are able
  • tether  the child to you and not the dog: if you are still concerned about bolting and you really need to tie you kid down so they cant run off tether them to you! you are the parent/caregiver and you can better understand and take being hit or kicked during a meltdown! you are also generally stronger than a dog.You are also much less likely to forget what your doing and try and chase a squirrel!



When looking for a program


Avoid any Program that promotes non tasks as tasks such as emotional support and natural reducing of meltdowns or says the dogs will be protective of you or the child
Ask about tasks, ask for examples of tasks they might train

RED FLAG!!!! READ THESE!!! (Be sure to read through and use this list when evaluating programs!!!)

RED FLAGS: http://servicedogcentral.org/content/node/592


Emotional Support Animals
Emotional support animals (ESAs) are a great alternative to a service dog, the handler of an emotional support animal doesn't have public access rights that service dogs do, how ever they do have special housing rights. Emotional support animals do need to have some basic manners and may even be natural a letters but they generally aren't task trained like service dogs must be. Though they can't come around public with you ESAs  are can be highly beneficial alternative to a service dog as they do provide the child or adult with emotional support and their presence may naturally help calm calm the person, reduce meltdowns ect

Learn more: http://servicedogcentral.org/content/ESA


(In loving memory of Nimrodel)

*note this article is prone to updates



Saturday, August 10, 2013

What happened to Nimrodel?

Hello,

    Nimrodel (Nim-row-dell) is now 10 years old and for those of you who don't know Nim has worked beside me for may years as my partner, best friend and Service dog. her tasks made it possible for me to manage many of the basic day to day things i struggle with due to my autism and she has on more then one occasion been a life saver for me. simply put she has been my life line for the past few years and before she was task trained and became a service dog she was my emotional life line. Nim is the reason I wake up everyday and even on the worst days. since she has retired to at home service i she is what i look forward to most, seeing her run up to me wagging her tail and getting kisses. Recent;y Nim has become very ill.

what happened to Nim?
well yesterday was a lot like any other day, we woke up and hung around the house a bit Nim seemed sore and i was waiting for an hour after my meds kicked in to take Nim out as she seemed content to just nap. after a bit i took her out. after she went out to pee and poop (just her first short walk) we went back in and i started to do some work on my blog. Nim decided to lay down and wait for me to be ready for our 1 mile walk. after a few minutes i hear Nim doing something so I turned to look and she was up on the mini trampoline and it seemed like she was going to use it to climb up on the bed for some cuddling.. however when i called her she didnt try to get up. she seemed i thought to be trying to decide how to do it. in hinesight i think i noticed her head moving a bit but it didnt register at the time. then I hear what sounded like a ripping sound so i lead her off the mini trampoline thinking it was going to break under her and I didn't want her to get hurt *i couldn't have imagined what was about to unfold*

when i got her off i realized it wasn't a ripping sound there was not tare then at second glance I realized it! it was pee! Nim had peed through the mini trampoline! so i asked her if she needed to go out and she started walking sideways towards me! this worried me she was walking at an angle seemed like she wanted a wall for support..a quick glance it looked like she was holding up her back leg and she fell. then she got up and fll again. i panicked! i scream and broke into tears i called pat and fought through my tears that it was an emergency and nim needed to get to a vet. then i ran to my roommate i could hear her getting up and falling but i was paralyzed in fear for a few minutes. we came out and nim was in the bathroom, she followed us out walking sideways and fell again. then it got even worse. she began looking like she was trying to get up and falling back really quickly in a repetitive and circular motion. she was literally spinning around the kitchen and across the room doing this. i scream as my knees buckled just crying. i couldn't even talk to the vet i was such a horrible mess. all i could think was that i was seeing my dog suffering and dying a horrific death! i thought they were seizures. Sarah did what she could to keep me calm reminding me to stay with nim and to pet her no matter how bad it got. i wanted to close my eyes and make it all go away. there was nothing worse then seeing Nim go through this! after she got off the phone with the vet we wrapped her up in blankets and protected her head. *Sarah suggested it as i couldn't think clearly at all at this point!

We knew things were really bad because when pat here she didn't even seem to realize he was in the room. normally she runs around in excitement when she so much as hears his car and when he walks in the house. however this time he came right up to her but it was like he wasnt even there. we all slowly and carefully lifted her onto the blanket and loaded her into the car. as soon as we got there staff came out and we got her into the office. they checked her temp 104.9 and we went over our week and what it could be ruling out what it wasn't. Nim was realy out of it. her eyes were glazed over and she couldn't even get off her side. when she would sit up she swayed. When the doctor came in he checked her over and checked for an ear infection. her ears looked good so he moved on to test her eyes and her sense of touch. through these tests he found she lost vision in her left eye. she also lost sensation in her front left leg. He said that it looked like she has old dog vestibular disease but her loss of vision in one eye and loss of sensation in her front leg is unusual so it could have been a stroke or possibly a brain tumor. the good news is that if it is old dog vestibular disease most dogs who get this recover to nearly 90 plus percent back to normal. Unfortunately it would cost thousands of dollars to figure out which for sure. while we waited for mom to get there Nim started to show some improvements. her eyes cleared up and she waged her tail when mom walked i showing she was aware. she also tried to sit up but didn't have to much of a rolling fit with our support. after reviewing our options we said we will take her home and see how she does with supportive care. We plan to reassess in a 5 plus day. We have much hope that she will regain her ability to stand and walk and may make a near full recovery! we are praying very hard for this



Nim's care: for care she needs subcutaneous fluids twice a day on antibiotics and aspirin (coated) physically nim cant really use her limbs and sways when she sits up. she is also tilted to the left the vet said this is classic with old dog vestibular syndrome and will likely improve if the diagnosis is correct but may always tilt her head a bit to the left. Still unable to walk

 



Please keep her in your thoughts and prayers she means everything to me!
     
                          -AutismDogGirl

FOLLOW Nim's recovery at

https://www.facebook.com/PrayersForNim